Definition: Estimated percentage of children ages 0-17 with special health care needs (CSHCN) whose care meets federal standards for a well-functioning system, by complexity of health care needs (e.g., in 2009-2010, 12.4% of California CSHCN with more complex needs received care meeting federal minimum quality standards).
Data Source: Data Resource Center for Child and Adolescent Health, National Survey of Children with Special Health Care Needs (Dec. 2012).
Footnote: These estimates are based on standards in six areas: (i) shared decision making between families and providers, (ii) care within a medical home, (iii) consistent and adequate insurance coverage, (iv) annual screening through preventive medical and dental visits, (v) access to community-based services, and (vi) for children ages 12-17, transition planning for adulthood. Children with special health care needs (CSHCN) have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and require health and related services of a type or amount beyond that required by children generally. CSHCN with 'less complex needs' experience health conditions that are managed primarily through prescription medication; children with 'more complex needs' require additional care, services, or therapies in order to manage their conditions. These estimates are based on a survey of the population and are subject to both sampling and nonsampling error. For more information, see https://www.childhealthdata.org/learn-about-the-nsch/archive-prior-year-data-documents-and-resources.
