Definition: Estimated percentage of children ages 0-17 with special health care needs (CSHCN) whose care meets federal standards for a well-functioning system (e.g., in 2009-2010, 16.3% of California CSHCN received care meeting federal minimum quality standards).
Data Source: Child and Adolescent Health Measurement Initiative. (2013). Children with special health care needs in California: A profile of key issues. Lucile Packard Foundation for Children's Health.
Footnote: These estimates are based on standards in six areas: (i) shared decision making between families and providers, (ii) care within a medical home, (iii) consistent and adequate insurance coverage, (iv) annual screening through preventive medical and dental visits, (v) access to community-based services, and (vi) for children ages 12-17, transition planning for adulthood. Children with special health care needs (CSHCN) have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and require health and related services of a type or amount beyond that required by children generally. These estimates are based on a survey of the population and are subject to both sampling and nonsampling error. For more information, see https://www.childhealthdata.org/learn-about-the-nsch/archive-prior-year-data-documents-and-resources.
