Definition: Percentage of children ages 0-17 with special health care needs whose families feel engaged in shared decision-making
with health care providers. Shared decision-making refers to the extent to which parents feel the child's providers: engage them in decisions about their child’s care, such as discussing treatment options; encourage them to ask questions; and respect their choices about health care.
Data Source: Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health, National Survey of Children with Special Health Care Needs; as cited in Children with Special Health Care Needs in California: A Profile of Key Issues, Lucile Packard Foundation for Children’s Health (Jan. 2013).
Footnote: Children with special health care needs are defined as those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. For more information, see the report in the Data Source above.