Definition: Estimated percentage of children ages 0-17 with special health care needs (CSHCN) who received and did not receive family-centered care in the previous 12 months, among those with at least one health care visit, by complexity of health care needs (e.g., in 2024, 73.2% of California CSHCN with more complex health care needs received family-centered care in the previous year).
Data Source: U.S. Dept. of Health and Human Services, National Survey of Children's Health (Nov. 2025).
Footnote: In these estimates, family-centered care is measured by assessing the extent to which a child's health care providers (i) spend enough time with the child, (ii) listen carefully to the family, (iii) show sensitivity to the family's values and customs, (iv) provide the family needed information concerning the child, and (v) help the family feel like a partner in the child's care. Children with special health care needs (CSHCN) have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and require health and related services of a type or amount beyond that required by children generally. CSHCN with 'less complex needs' experience health conditions that are managed primarily through prescription medication; children with 'more complex needs' require additional care, services, or therapies in order to manage their conditions. These estimates are based on a survey of the population and are subject to both sampling and nonsampling error. The notation S refers to estimates that have been suppressed because (a) there were fewer than 3 respondents in that group, (b) there were fewer than 20 total respondents and all were in the same group, or (c) the margin of error for the estimate is 10 percentage points or greater. The annotation [!] indicates that the estimate's margin of error is greater than 5 percentage points but less than 10 percentage points. For more information, see https://www.childhealthdata.org/learn-about-the-nsch/NSCH.
