Definition: Estimated percentage of adults with caregiving responsibilities for children with special health care needs (CSHCN) ages 0-17 who have a positive experience and have a stressful experience helping their children with medical care or therapeutic activities, by type of experience (e.g., in Wave 4, 61.4% of California caregivers of CSHCN had positive experiences helping their children with medical care).
Data Source: Family Experiences During the COVID-19 Pandemic. (Jun. 2022). Questionnaire: American Academy of Pediatrics, Centers for Disease Control and Prevention, Prevent Child Abuse America & Tufts Medical Center; California oversample: Lucile Packard Foundation for Children's Health & California Essentials for Childhood Initiative (California Dept. of Public Health, Injury and Violence Prevention Branch & California Dept. of Social Services, Office of Child Abuse Prevention).
Footnote: Children with special health care needs (CSHCN) have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and require health and related services of a type or amount beyond that required by children generally. Positive experiences are those about which caregivers of CSHCN somewhat or strongly agree with the statement, Helping my child(ren) with medical care or therapeutic activities has been a positive experience, and/or has brought us closer. Stressful experiences are those about which caregivers of CSHCN somewhat or strongly agree with the statement, Helping my child(ren) with medical care or therapeutic activities has been very stressful, and/or has resulted in increased tension at home. Positive and stressful experiences are not mutually exclusive (see Positive but Stressful Experiences Helping CSHCN with Medical Care). The questionnaire was administered during the following periods: Nov. 9 – Dec. 11, 2020 (Wave 1); Mar. 22 – Apr. 12, 2021 (Wave 2); Jul. 8 – Jul. 27, 2021 (Wave 3); Jun. 3 – Jun. 29, 2022 (Wave 4). These data are subject to both sampling and nonsampling error. The annotation [!] indicates that the estimate’s margin of error is at least 5 percentage points but less than 10 percentage points.
