Definition: Estimated percentage of adults with caregiving responsibilities for children with special health care needs (CSHCN) ages 0-17 for whom the experience of helping their children with medical care or therapeutic activities is both positive and stressful (e.g., in Wave 4, 28% of California caregivers of CSHCN had positive but stressful experiences helping their children with medical care).
Data Source: Family Experiences During the COVID-19 Pandemic. (Jun. 2022). Questionnaire: American Academy of Pediatrics, Centers for Disease Control and Prevention, Prevent Child Abuse America & Tufts Medical Center; California oversample: Lucile Packard Foundation for Children's Health & California Essentials for Childhood Initiative (California Dept. of Public Health, Injury and Violence Prevention Branch & California Dept. of Social Services, Office of Child Abuse Prevention).
Footnote: Children with special health care needs (CSHCN) have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and require health and related services of a type or amount beyond that required by children generally. This indicator reports on experiences about which caregivers of CSHCN somewhat or strongly agree with both of the following statements: (i) Helping my child(ren) with medical care or therapeutic activities has been a positive experience, and/or has brought us closer; (ii) Helping my child(ren) with medical care or therapeutic activities has been very stressful, and/or has resulted in increased tension at home. The questionnaire was administered during the following periods: Nov. 9 – Dec. 11, 2020 (Wave 1); Mar. 22 – Apr. 12, 2021 (Wave 2); Jul. 8 – Jul. 27, 2021 (Wave 3); Jun. 3 – Jun. 29, 2022 (Wave 4). These data are subject to both sampling and nonsampling error. The annotation [!] indicates that the estimate’s margin of error is at least 5 percentage points but less than 10 percentage points.
